The tongue and palate ache or burn as if you had chili in your mouth. But the blazing fire does not come from food.
On the contrary, despite extensive diagnostics, it very often remains unclear what causes the pain in such a sensitive area.
The disease is by no means rare. Up to 5% of the population is said to suffer from it.
Complaints
Anna, 52 years old, is desperate. She has already seen so many doctors and no one could find anything. Yet the discomfort is almost unbearable: A persistent burning sensation on the tongue and in the mouth. Sometimes more stinging, then more burning, the mouth often dry and the food tastes unpleasantly sour.
It had started after an antibiotic therapy because of a bladder infection. Subsequently, there was an unpleasant fungus - also in the mouth. At that time she had the first complaints. But all that had been treated long ago and still the complaints had increased.
She had been to ENT doctors, dentists, dermatologists, neurologists and naturopaths. The result: Many opinions - no help! The complaints only got better when she slept and sometimes when she ate.
However, she had not been able to sleep well for quite a while. She kept waking up at night and felt shattered in the morning. She wasn't feeling well in other ways either. She had gastrointestinal problems, headaches, and had become thin-skinned and nervous overall. But the worst thing was this permanent burning she just couldn't escape. She could hardly think about anything else.
Complaints - silence at night!
Burning tongue or mouth, glossodynia or burning mouth syndrome is a complaint that is characterized by the following symptoms:
- Burning of the tongue, lips or palate on one or both sides.
- Increase of symptoms during the day
- Improvement at night or during meals
- No physical findings
- Sensations of discomfort in taste (metallic, sour, bitter)
- Sensory disturbances (rough, sore)
- Dry mouth
The complaints are not always present in full expression. About two-thirds of patients complain of dry mouth or taste sensations (bitter/sour). About one third also complain of mouth sensation (rough, sore, foreign).
In contrast to the numerous complaints, however, there are no tangible organic findings. Even for the dry mouth there is no verifiable background, the amount of saliva is normal when measured.
Frequency: Women predominate!
There are no exact figures about the absolute frequency, but the disease is relatively common. Estimates range from 0.7 to 4.6% of the population.
The symptoms occur much more frequently in women than in men. Exact figures are not available. Figures vary between 1:3 and 1:16.
Women are particularly affected before or after the onset of menopause. The mean age is between 55 and 60 years. 90% of patients are within 15 years of the onset of menopause. However, the range is high. Younger and significantly older women (in one study 27 to 87 years) can also suffer from the symptoms. Children or adolescents, on the other hand, are never affected.
This means that the same risk group is affected more frequently, as is the case with practically all functional disorders.
Diagnosis
Thorough diagnostics
Tongue burning over several months first requires a thorough examination of the oral cavity and a clarification of possible causes. This depends on the individual case. Usually, an examination includes the following elements:
- Blood count, blood sugar, immunological parameters, vitamins, iron levels.
- Smears and cultures for fungi, bacteria and possibly viruses
- Imaging examinations (ultrasound, MRI, CT)
- Examination of salivary flow
- Allergy tests
- Examination of reflux disease (heartburn)
- Examination of triggering medications (discontinuation test)
Types and indications
Although little is known about the causes, attempts have been made to divide the complaints into different subgroups.
- Type 1: Patients wake up without symptoms. Thereafter, symptoms worsen throughout the day. About one-third belong to this pattern, which is more often associated with other causes (e.g., vitamin deficiency, iron deficiency).
- Type 2: Patients suffer from continuous symptoms and therefore also have difficulty sleeping. A good half correspond to this category, which is more often associated with psychological stress.
- Type 3: About 10% of those affected suffer from changing complaints, changing locations of pain. Allergies may play a role here.
Causes
The cause of the symptoms is not or only little understood. Nevertheless, individual factors are known that promote the symptoms.
In most cases, several factors come together to trigger the symptoms. An infection with fungi (Candida albicans) is said to be particularly frequent at the beginning of the symptoms.
General
- Hormonal disorders (hypothyroidism, diabetes, menopause)
- Deficiency of iron, zinc, vitamin B
- Side effects of medications (blood pressure medications, allergy medications, cardiac arrhythmias, antidepressants, neuroleptics, ACE inhibitors)
- Other diseases (Sjögren's syndrome, reflux)
Local
- Infections in the mouth area caused by fungi or bacteria
- Mechanical irritations e.g. ill-fitting dentures
- Irritations after dental treatments
- Persistent (nocturnal) grinding
- Dry mouth
- Allergies
Psychological
- Anxieties
- Depression
- General increased sensitivity, irritability
Supertongue
There are considerations that people with tongue burning have a particularly sensitive tongue. In fact, the number of taste buds is not the same in all people. Some people (especially women) have significantly more of them and often they react more intensely to bitter substances. These people with the "super taste" ("supertaster") may be more often affected by the burning mouth. This increased sensitivity to taste is due to the presence of a special gene.
Background
How can the complaints be understood?
How can the complaints be understood? At present, there is no established model of understanding. From our point of view, however, there is a lot to be said for the assumption that burning mouth and tongue have similar conditions of origin as fibromyalgia syndrome or vulvodynia syndrome, i.e. central sensitization.
At the beginning of the symptomatology there is a local irritation in the oral cavity. This can typically be an infection (e.g. Candida albicans). Other local causes would be dental procedures or similar.
But this local irritation is not sufficient for the development of the symptoms. Usually, two other factors are added:
- A personality with increased sensitivity, i.e. people with finer perception, possibly there are also congenital causes ("supertaster").
- Increased stress (job, personal relationships) before or during the period in question.
Vicious circle
This constellation now favors a vicious circle: In view of a finer perception, local irritations are more easily perceived. In view of a tense and insecure personal situation, these take on a more threatening character. The feeling of helplessness and being at the mercy of others sets in. Due to numerous examinations and persistent complaints, attention is increasingly focused on the oral cavity, whose importance continues to grow. This leads to an increasing lowering of the stimulus threshold and thus to a further flooding with signals. This increases the anxiety and tension and thus intensifies the pain....
In the end, the symptomatology has become automated: pain, anxiety and tension are mutually dependent.
As is often the case with chronic pain disorders, other functional disorders are now added.
- Sleep disturbances
- Gastrointestinal complaints
- Breathingdisorders(shortness of breath, feelings of anxiety)
- Dizziness, lightheadedness
- fatigue
- Sensitivity to stimuli (freezing, sweating, sensitivity to noise, light, smell)
- Anxiety and frightfulness
- Depressiveness, when nothing seems to help.
Therapy
What helps now against the complaints? First of all, the causes should be treated. If a fungal disease is present, an appropriate anti-fungal therapy is naturally at the forefront of the measures. An iron or vitamin deficiency can also be easily remedied.
Next, an attempt can be made to calm the irritated oral nerves. This can be done, for example, by using a local anesthetic (e.g., lidocaine lozenges). There are also studies on the effectiveness of sucking (not swallowing) sedatives or even antidepressants. However, this therapy should be prescribed and monitored by a physician.
Local overstimulation with pepper extract (capsaicin ointment) may help improve after a period of irritation, although this can also be uncomfortable.
Taking antidepressants also leads to an improvement of the symptoms in some patients, especially if this makes sleep restful again.
But in most cases, the causes are not so easy to outline. Once the vicious circle has been established, no sustainable progress can usually be achieved through simple measures. More complex, multimodal procedures are then necessary.
Multimodal therapy
In the case of pronounced complaints, there is an increased influx of stimuli, on the one hand from the oral cavity, and later usually from other regions as well. The result is an increased sensitivity to pain, or a general sensitivity to stimuli. The constant burning sensation draws attention to the mouth region, which - unintentionally and without influence - further intensifies the symptomatology.
The affected patients later enter a state of general insecurity and irritability, in the end also anxiety and depressiveness.
In order to remedy this situation, it is necessary to re-establish security and trust in one's own body and to make it possible to "look away" from the complaints, i.e. to ignore something that is obviously in the foreground. This is similar to the difficulty of not thinking about yellow elephants for one minute.
Therefore, the focus is on procedures to increase well-being and safety. This is usually achieved through massages, physiotherapy, heat, exercise, healthy diet, relaxation procedures, respiratory therapy and the like.
At the same time, procedures are added to increase confidence in one's own resilience. Here we use physical training, cold chamber and also psychotherapeutic procedures.
Very often we find a change in breathing. Normalizing this is often a decisive step in therapy.
It is important to successfully "convince" the body to process stimuli in a different way, i.e. to block them out again. This can only be achieved by practicing highly intensively for a while. That is why we mainly rely on intensive therapies in which two experiences are sensually experienced again and again in a very short period of time, many hours a day:
- My body feels good, it is safe.
- I can trust myself to do something
In this way (to work hard, not to work too hard), progress is usually possible that cannot be achieved through longer but less intensive therapies (once a week for months).
More details can be found in the functional disorders and in the description of the different methods.